REDCap
Move to REDCap for initial data capture instead of Audere + OneDrive.
Involves:
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Setting up REDCap so it will work for all stakeholders.
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Setting up data entry triggers (webhooks) to post data in real-time to endpoints for enrollments and manifest records.
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Converting enrollment data to FHIR?
Motivations
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Audere is going away, at least for prospective, kiosk- or clinic-based studies. Maybe still around for at-home studies?
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Centralize around a common core of survey questions and single enrollment repository with better visibility for groups doing enrollment.
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Better pipeline for receiving specimen manifest records.
Challenges
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Should we push to map question/answers to a BioPortal or FHIR ontology?
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How closely do we need to pay attention now to survey construction to avoid pitfalls later? Probably closely.
Prior art
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REDCap on FHIR — export FHIR documents from REDCap, paper and slides available, not sure about code.
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Dynamic data pulls (DDP) on FHIR — a way to have EMR records flow into REDCap (and then onto ID3C)
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FHIRCap?